Quote:
Originally Posted by LouLou1978
Hi there,
I am surprised they are discharging you. I am still under investigations but my neuro told me they don't discharge you. They have to see you on a regular basis for follow up to check if things are getting worse i.e. looking for large fiber involvement. They also need to keep running the same blood tests ie.ANA, HBA1C to make sure that things haven't changed or you haven't developed anything that could make the neuropathy worse.
I am in Uk not sure where you are?
Loulou
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I am in Lincolnshire, he said he has done all the tests and is satisfied I have SFN
The rheumatologist is convinced I don't have any condition as her one set of bloods were negative. Both have discharged me with no plan to repeat any bloods at all. I even said what about blood tests changing in the future and the Rheumy agreed they could but still no plan to re test.
I am back to my GP to just try and manage symptoms, I also see a pain consultant who just books me in for a lignocaine infusion every three months.
It's really crap care 😏