Quote:
Originally Posted by beatle
I have been discharged by three neuros since there are no more tests, my diagnosis is confirmed and there is no cure or treatment. My PCP prescribes meds for the symptoms and well, that's about it. Now I wait and I wait for new treatments to come to market. I sure wish they would hurry.  |
I wish they would see you at least once a year to monitor progression etc. or just to talk about possible new treatments/meds etc.
It's so sad that they just don't care. I have been discharged by three neuros b/c there's "nothing wrong" with me. After 4 neuros this last one is doing a skin biopsy. I got to this 4th one after the 3rd one said I have neuropathic pain but since emg and mri is normal I don't have anything wrong. But sent me for another opinion at least. The first two just said "see you later"