Is there anyone out there battling MG without taking the recomended medication?

I was diagnosed at age 15 and was told i had 10 years to either be dead or paralysed. The drugs they offered had low success rate and were full of bad side effects. It scared me, so i walked out of that hospital and didnt go back for 22 years.

For roughly 3 to 4 months each year had double vision and struggled to talk and swallow. I tried all sorts of alternate healings for 10 years until i saw a real pattern.....they all promised me they'd heal me if i really wanted it! So obviously when their treatment didnt work the answer was always that i was blocking it. I became sceptical of all things spiritual. One year (for the third time) i came close to death either from malnutrition or choking so i went to hospital and accepted the medication and then a thymectomy. Although the drugs pulled me out of my critical state (which i am grateful for) I have struggled more since then than for the 22 years previous.

I found the drugs instantly gave me bad headaches and migraines which lasted solidly for 3 years (including one year since weaning off) My symptoms which had been facial for 22 years were suddenly in my arms aswell. I also now have intense muscle spasms in my therasic spine and neck area since the thymectomy 4 years ago, and i developed a general fatigue making day to day life harder. I no longer work. I weaned off the medication 2 years ago as i felt convinced although they helped with the intense symptoms, that i was better off before taking them. Right or wrong? I dont know...

From what I read, there are plenty of people on the medication who are still struggling so Im just curious to chat about it?