View Single Post
Old 04-22-2015, 03:14 PM
JoannaP79 JoannaP79 is offline
Member
 
Join Date: Feb 2015
Location: South England
Posts: 246
10 yr Member
JoannaP79 JoannaP79 is offline
Member
 
Join Date: Feb 2015
Location: South England
Posts: 246
10 yr Member
Default

Quote:
Originally Posted by Littlepaw View Post
I think cost is big thing with IVIG. It runs upwards of $3K depending on much is needed. If the PN is autoimmune then certainly IVIG would make a difference. For that matter, IMHO if it's early autoimmune-y, say a body's hyper reaction to something that maybe isn't a full autoimmune disease (think drug or viral reaction) then steroids knocking the immune system down a notch could be helpful before all the damage is done. I wouldn't be afraid of a short course of oral steroids. You're not talking long term. I think you'd know pretty soon if you had something that would respond.
I've been told funding is a key issue for the NHS (UK). I am told it may not help and could cause more harm than good. You just dont know whether they are saying that just to deter you or not. I cant find enough on the internet about SFN and IVIG. I have searched all over for weeks and there aren't a great deal of studies or trials out there.
JoannaP79 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
canagirl (04-22-2015), echoes long ago (04-22-2015)