Cosmos and other guys who think they have Pudendal Neuraligia,
The pain I have is from clothing (even the softest of underwear) rubbing up against the penis from the circumcision scar line to the head of the penis - more so on the underside of the penis (maybe because that's the area that rubs against the underwear because of the way the penis hangs naturally).
I also have a lot of pain from sitting and have had it for years. The pain is definitely pelvic pain and have had physical therapy for it but it hasn't helped much. Then two years ago this new penis pain from underwear rubbing against it started to happen. It's a nightmare - not being able to sit without pain and not being able to walk without penis rubbing against underwear pain. I've done it all - MRIs, every possible medication, every possible specialist; I won't even waste your time with the list. One interesting MRI done by Hospital for Special Surgery (in NYC and super high rated hospital) ruled out pudendal nerve entrapment. However, just because entrapment has been ruled out does not mean pudendal neuralgia does not exist.
Cosmos - how bad is the pain from sitting and exactly where is your pain when sitting? Any other guys have these two problems of sitting pain and penis rubbing against underwear pain (between circumcision scar line and head of penis) at the same time? Would love to hear from you all!
We can't rely on Doctors alone. We need to help each other figure these things out.
Quote:
Originally Posted by cosmos
In the few weeks since i posted I am feeling about 30% better. The feeling of what I have come to learn is "allodynia" is better, though Im not pain free, Im functional. No where near a return of libido though. In my case, I wonder if it has been due to a skin tear where the frenulum and corona come together. This issues seemed way too small to explain my symptoms, less than half a dime size, but my theory is there is a nerve under that injury giving referred pain similar to pudendal nerve entrapment. Part of the reason I think this is because my pain is clearly on the underside AKA ventral of the shaft, not on the dorsal side. Im totally painless on the top half of the shaft. I can't understand how the pudendal nerve would spare the dorsal half of my shaft...
I have been tested for HSV 1 and 2. At 3 days after symptoms started, 2 weeks, 3.5 weeks and again at 6 weeks. Thats where I a now. All have been negative. But it can take over 12 weeks for people to turn positive. I really think that could be it.
I can't say much about the chicken pox theory, except to say that it falls in the category of idiopathic, AKA unknown. The rarity of our symptoms is hard to explain whatever it is.
Im just hoping with time, it gets better. My improvement also coincides with starting amitriptyline AKA elavil. Not sure if that is cause and effect yet or not. Pudendal nerve entrapment has also been going thru my head if i have pain related to sitting that gets worse by the end of the day, as my job involves a lot of sitting.
Will update when if I get better or know anything more.
cosmos
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