I was also unable to run as a child, and not taken to doctors. My case was complicated by the fact that my parents were both married to other people and the CMT is in my birth father's family, so no one wanted that to come out. My half sister had leg braces from childhood.
I was evaluated at Johns Hopkins and told much the same thing, no treatment no point in further testing. Mine is axonal but eventually it all goes. Our symptoms are similar, although I also have very sharp pains in my legs and have for years for which I take pain medication. Stairs are very difficult. The numbness for me has progressed to hip level, I cannot feel temperature at all and sensation is reduced. My hands burn now and the last two fingers on each hand are numb. It had progressed quite a bit in the last few years.
Do you have children? I have two sons with symptoms, 28 and 30. One has numb feet, the other has numb hands and weak ankles.