Until we get someone famous to admit it (Andy Griffith has PN & I think Mary Tyler Moore - as a result of her Diabetes- but they won't talk about the PN)
and steps up like Michael J Fox with Parkinson's - we won't get the coverage we deserve.
I hope the letters may motivate someone, but I think unless you can get someone with a severe case to be a 'poster gal/guy' the interest just ain't there.