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Old 04-23-2015, 02:06 AM
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kiwi33 kiwi33 is offline
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Join Date: Jan 2015
Location: Sydney, Australia.
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kiwi33 kiwi33 is offline
Grand Magnate
kiwi33's Avatar
 
Join Date: Jan 2015
Location: Sydney, Australia.
Posts: 3,093
10 yr Member
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Hi Staciemomofpnkd

Welcome to NeuroTalk.

I have only been a member for a short time but have discovered that it is a very supportive and knowledgeable community.

I am sorry to read of your daughter's PNKD diagnosis.

You might find the fairly technical information about it here helpful; http://www.medscape.com/viewarticle/581684 .

All the best.
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