Quote:
Originally Posted by Tunaboy
It kinda sucks because what if your PN hasn't progressed enough to result in a positive biopsy. Then you won't get early treatment while your symptoms are relatively mild, which has a higher chance of full recovery. Instead you have to wait until you get bad, then get treatment but by then it might be too late  |
I worry about this exact thing. I have SFN confirmed by punch biopsy, significant loss of density, burning only started sept / Oct and its awful already. Spreading and I fearwwhatstate i may be in within a year. Its pretty obvious mine is autoimmune. Being deterred at every juncture from ivig. Cost and resource always the issue. I am still pushingto be considered but I know how ruthless they are when it cones to resource. I am not at deaths door so am not severe enough. Also, in NHS guidelines there is no mention of use for Sfn.