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Member
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Join Date: Sep 2013
Location: Georgia
Posts: 905
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Member
Join Date: Sep 2013
Location: Georgia
Posts: 905
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Good Morning Billylyne :)
Quote:
Originally Posted by Billylyne5
He doesn't want to see me again at all as he said there is nothing he can do, he has decided I have SFN and that's it.
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I have SFN and my neuro released me after 10 months. He only uses the 3 major drugs for SFN, gabapentin, Cymbalta and Lyrica. I got up to 2700 mg a day of the gaba and then had to titrate down to my current level of 1800 mgs a day. Anything over 1800 mgs and I 'hear voices/music' that is not there  Cymbalta over 30 mgs was the same way and Lyrica gave me a horrible stomach ache. So he released me on the 1800 mgs of gabapentin and told me to get a pain mgmt. dr. After being told the same thing by my PCP and foot and ankle dr I am finally in pain mgmt. and have been since last October.
The only dr's I use now are PCP and pain mgmt. dr. I have no A or C fibers left in my feet via skin biopsy of ankle so there is no chance of these nerves regenerating.
Take care.
Debi from Georgia
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