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Old 04-24-2015, 11:19 AM
jenng jenng is offline
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Join Date: May 2013
Posts: 135
10 yr Member
jenng jenng is offline
Member
 
Join Date: May 2013
Posts: 135
10 yr Member
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I have axonal sensorimotor neuropathy diagnosed by EMG in my left foot/lower leg. (I have both long-fiber & small fiber involvement.) I have sensory involvement on my right foot/lower leg. I have twitching that comes and goes in my left foot, especially the inner arch. Better in the morning and increases throughout the day with activity. I also have benign fasciculations that are random throughout my body. These are variable & I find if I am well-hydrated and taking magnesium they aren't as frequent.

My neuropathy is idiopathic & frustrating because I have many things that could be causing symptoms. I have spinal issues both cervical and lumbar, I have a Chiari I malformation (7 mm) and I have autoimmune history on my mother's side. I had a low-positive ANA/CRP, also have some antibodies to receptors that affect autonomic nerves. And...I have Herpes Simplex type 1 since childhood, also test positive for Epstein Barr virus. Last thing I can think of, I took 6 months of INH after a turberculin skin test was positive back in my early 20's. Pretty sure I've taken Cipro before for UTI's I used to get quite frequently. My point is, I have lots of things that may contribute, but no identified cause, so I am left as many of you--symptom management. My neurologist is kind enough to see me a couple of times a year for follow-up.

Interesting about the plexius neuritis; as I have been dealing with a frozen shoulder since Nov. It's much better now, but I had a manipulation under anesthesia and loads of PT. Much better mobility, but still painful. No answers as to why I have this, it is not an injury, rather I woke up with it & it froze within about 2 weeks time. Cause is idiopathic. I am beginning to HATE that word.
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Idiopathic Sensorimotor Polyneuropathy
Atypical Migraine
Chiari 1 malformation 7 mm
PLIF L5-S1 Sept. 2013

Lumbar MRI March 2013: degenerative changes from L3 to S1. L3 and L4 have tiny annular tears with disc bulge. L5-S1 bilateral pars defects anterolisthesis (spondylosis/spondylithesis?) I have an annular tear here too, along with a conjoined left L5-S1 nerve root. Mild effacement of the thecal sac at the origins of the bilateral S1 nerve roots, left greater than right. Mild bilateral Neural foraminal stenosis.

Last edited by jenng; 04-24-2015 at 11:36 AM. Reason: Add info.
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