My three neuros and two MD's never brought it up while assuring me that we have "checked everything", "ruled everything out" and that we will probably "never know the cause". These are all things that I have been told.

But I never considered it either. I didn't realize it can cause nerve pain, numbness and bone loss, that it can develop later in life and that the hallmarks can present well after the symptoms of PN.

Even if I don't have it, I know I need to keep searching in spite of what I have been told. Thank you again Mrs D for inspiring me to keep going and to be open to possibilities.