Well I just posted my super long story and it dissappeard when I clicked post..spent 45 min.
I have browsed forever and not found one post where anyone has distended neck veins on the affected side..I also have cardiomyopathy after almost 6 years since the beginning of my symptoms. I am going to die from my heart because I feel the compression after so many years has caused my heart to work way too hard. I almost got a venogram once but insurance wouldn't pay for it.

Doctors won't even admit that my bulging external,anterior and subclavian veins on my left are an issue...just tell me it's normal regardless of the fact they weren't like that 6 years ago. This all happened after a long cross country skiing trip. Feel like throwing in the towel.