hi tracy,

if i'm remembering right, didn't the eye dr say you had optic neuritis?
if that's true i'm wondering why you're not being treated with some steroids.

just because they may not have firmly diagnosed you doesn't mean they can't treat symptoms. just my thought.

i would think that worse might mean losing vision, mobility, trouble with breathing or your heart, severe pain. is there a friend or family member you could kind of team up with for help?

start to get copies of your test results from your drs. get copies of your mri's.
then begin to amass a medical file on yourself. the reason? 1. you learn many things by reading your own records. 2. it's good to have these things in case you see another dr and can show them your results.

keep us posted ok?