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Originally Posted by Coach2E
Thank you so much for your reply and sources.
My doctors literally told me "well, you don't have Lyme's" and then snickered. That was on the first day I talked to them. I have been bitten by ticks, its not uncommon for me to find one or two a year. I live in a very rural area in mendocino county in northern CA. I would love some direction to a Lyme literate doctor, my doctors here think its a myth.
Thanks again for the information! It's very much appreciated!
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Your docs reaction is, sadly, typical. California has a huge Lyme Disease problem.
Here is the Lyme website that was started in California. I have started you at the section where it gives doctor referrals to doctors who know and TREAT LD but there is a wealth of other info on this site. You have to join. I would also get on their forums and ask for a LLMD(Lyme Literate MD) in your town or county and folks will send a private msg because doctors names are not posted to the public). My best advice is research yourself from the symptoms listings. Lyme Disease can be neurologically devastating and can get into the brain, which happened on both counts for me. I lost my career to it. I did get better but every time the antibiotics were stopped, all my symptoms came back. But, I had it for many yrs before dx.
http://lymedisease.org/resources/referrals.html
Good luck, if it LD, get treated as promptly as you can. Don't rely on your primary care doc. One warning, LLMD,s have gotten very expensive, at least here in CT because since insurance deny treatment so often, they just opt out of taking any insurance coverage. My doc explained he used to spend half his day arguing with insurance companies and the other have explaining to patients why they were denied and soothing them when they cried.
Take care, Diandra
feel free to private msg me if you want to ask personal questions.