Quote:
Originally Posted by velkyn
Hi. I have had RSD in my foot for about 1.5 years, it is progressing. My dr recommended me searching for a group so I might not feel so angry and alone. So here I am.
I'm shocked! I had no idea other people really experienced the same things I do. I have been going through this all alone just trying to find things that help. It's been quite clear what hurts.. But can be elusive to find things that help. I'm stunned to read other people have issues with socks and shoes and cold! I try and keep hoping to find something fashionable to wear that I can tolerate more than 30 min! It's very frustrating to only be able to wear no socks/shoes or the one type of ryka tennis shoes that work and only thin socks with no texture inside! Omg, I thought I must be crazy!
My dr diagnosed me after a mom healing fracture and is very supportive but after failed nerve blocks and only minor relief from medications.. And a suggestion of neuro st
Placement... He just doesn't have a lot of answers. He has hoped this pain would burn off over time... It hasn't yet. I'm exhausted and furious that My life is so effected. I am not able to get out much other than drs appts and high medication doses to walk any length of time. I've spent the better part of the last two years physically in bed, hopeless.
I thought the other painful symptoms I've been having are just related to atrophy but he and I discussed today that it is most likely progression of the RSD. I'm angry and terrified of living this way or getting even worse.
I've decided to try acupuncture and even start seeing a therapist who specializes in chronic pain. I'm not happy about any of this. I feel ashamed, guilty and pathetic because I can't understand why I can't just suck it up and push through and continue to be the major financial contributor I had been. I'm so very angry and ashamed. I feel weak and worthless.
I hope finally connecting with other people who have this miserable condition will help me learn and find effective coping strategies. I don't want to live this way! I want my life back =(
|
wow, i its amazing how much I can relate to this. I am in college and had to drop out because of it, and I am having a hard time accepting it. I enrolled in classes for next semester, even though I know it will be a challenge, if possible. I am so angry as well, and depressed. It is most frustrating to me that people don't understand, and that no one can help me. people just tell me to learn to live with the pain because its my new reality, but its so hard to do that, its just not that easy. I feel weak, and like i am not strong enough. I am new to this group, and want to talk to people who can relate, but it also scares me when I hear what seem like horror stories which could be my future.