I've had this question for my neurologist since I was first diagnosed. And his answer is always, "the problem with PPMS is that there is no treatment". I always found that odd. But then I realized what he was talking about.

If he diagnoses me with PPMS, then I am not eligible for any DMD and he's basically given up on me. I'm 30, have two young children, and since MS type is somewhat of a guessing game, he refuses to give me the diagnosis of PPMS until it becomes blaringly obvious. PPMS is not a diagnosis that can be made right away anyway... it takes years to see what's going on. A symptom journal that you keep up to date can help figure out the puzzle over time.

For now, my diagnosis is RRMS despite me really not remitting from anything. Tysabri has certainly kept me stable though so I'm trying to stay positive in thinking that it is a relapsing form. I start Lemtrada in one week, and some neuros are prescribing it for progressive MS despite it not being marketed for this use. So I have some hope that regardless of what type I have, I might do well with this drug.