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Old 04-26-2015, 02:43 PM
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Littlepaw Littlepaw is offline
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Join Date: Nov 2014
Posts: 1,537
10 yr Member
Littlepaw Littlepaw is offline
Senior Member
Littlepaw's Avatar
 
Join Date: Nov 2014
Posts: 1,537
10 yr Member
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Hi and Welcome!

So sorry you had to come and find us but there is good support and plenty of understanding. First of all you are not crazy - your nerves have been thrown into overdrive by trauma and nerve healing is slow. CRPS diagnoses are hard to accept, one because nobody wants one and two because when cases are not florid it can really be hard to be certain. It is great you don't have autonomic symptoms but that seems kind of strange to me. Are they a thousand percent sure there isn't something else causing your pain? CRPS is a diagnosis of exclusion. With 3 surgeries behind you there could be any number of things going on. If you have CRPS then you have CRPS but make sure there is nothing treatable first.

I posted some info under the heading Nerve Injury Resources a few days ago. That is always something to consider post-op or post-injury. There is also some great general CRPS info for Dr. Pradeep Chopra at this link. http://youtube.com/watch?v=s3LKhOZ8mAM
He gives lots of tips on treatment and therapies. He is Non-doomsday and fairly conservative.

Keep moving and working on gentle consistent exercise. Get in the pool if you can, Aqua therapy is the best! Get support, therapy is helpful in dealing with the changes, sadness and anxiety and can help you learn ways to manage the pain. Decreasing stress is good all around. Be gentle with yourself, this is not your fault. Give your foot and ankle lots of lovin' through gentle massage and skin care this helps the nerves re-organize and helps your attitude towards your injured limb. And be realistic, this goes for your doctors too. Recovering from serial ankle surgeries is harder than recovering from one. The changes in mechanics can take a lot of time to settle and remodel. Keep working at it. Healing takes time, trial and error you WILL make improvement. 80% of CRPS sufferers do!

Sending Healing Love, Littlepaw
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