[QUOTE=LMPinkereton;1138462]
Quote:
Originally Posted by jurgen975
I am very confused by a few of the replies in this thread. Please help me understand, since, apparently, I have been misinformed for 13+ years.
Long story, short, I have been suffering from (idiopathic) SFN (and a few other things) for over 13+ years.
Firstly, I have always understood that SFN never gets better (no such thing as being healed). It only gets progressively worse . If you "get better" and all the pain is gone, it's something else and not truly SFN.
And secondly, mediations like gabapentin (etc) don't "cure" SFN. They are given to help relieve some of the pain.
Reguards
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I think that my polyneuropathy was cause by a medice called dapsone.
There is not much literature about this except that it is possible that it in reversable but that only happend is some cause after a period of 3 years.I have this for 6 years now.
But a dapsone neuropathy is mostly a motor neuropathy.The professors i visited could not agree if this was a dapsone induced neuropathy or not and they didnt even know if i had a small fiber neuropathy or not nothing showed on my EMG.
Secondly the neuropathy i have is very local.
When i new i had a neuropathy i searched the internet for a cure and i came across a group in the netherlands that used acapuncture/electro ecapuncture and supplements.
So i had more that 100 electro acapuncture treatments but i think 20 where more then enough to kill the worst pain i had.This treatment is very effective for killing pain and i took acethyl L carnitine/alpha lipioc acid for years.
This didnt help so much but i didnt.
Over the years i stopped this supplement.
Even after those 100 electro acapuncture treatments the pain in my feet became worse but slowly demised till zero.
I still had tingling so i tried something new actually its a protocol for people with a CIAP.
I took 2000 IE vitamine D in combination with PEA and PEA cream for 3 weeks and after that a so now and then a pill with vitamine D.
Actually i should do this for a half a year i dont see the need for this.
its in dutch so you have to translate this
http://www.neuropathie.nu/overige/ci...eschermen.html