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Originally Posted by jenng
I also have benign fasciculations that are random throughout my body. These are variable & I find if I am well-hydrated and taking magnesium they aren't as frequent.
My neuropathy is idiopathic & frustrating because I have many things that could be causing symptoms. I have spinal issues both cervical and lumbar, I have a Chiari I malformation (7 mm) and I have autoimmune history on my mother's side. I had a low-positive ANA/CRP, also have some antibodies to receptors that affect autonomic nerves. And...I have Herpes Simplex type 1 since childhood, also test positive for Epstein Barr virus. Last thing I can think of, I took 6 months of INH after a turberculin skin test was positive back in my early 20's. Pretty sure I've taken Cipro before for UTI's I used to get quite frequently.
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This sounds just like me. The year I developed BFS (July 2013), I had a UTI every month for 6 months prior to that, taking Cipro and other meds. When I took Cipro, my twitching turned into what I can describe as mini seizures all over my body, everything was popping and jerking, much beyond twitching. Once Cipro was out of my body, things died down to "normal" twitching. I also have low positive ANAs, I have 2 herniated discs in my cervical neck. I have Herpes 1.....
Was the Epstein Barr virus a simple blood test? Who did that test, a neuro or your primary care doctor?
By the way, two neuros declared the neuro who diagnosed me with plexus neuritis as WRONG. They don't think I have it, but agree I could have something inflammatory going on. But they are not trying to find out what.
