[QUOTE=EnglishDave;1138721]
Quote:
Originally Posted by canagirl
Hey Canagirl,
I can understand your concern about eye problems having them myself, didn't the Optician give you any idea what is causing this thinning? Glaucoma or something else?
Also, what work do you do? Are you in danger of doing more damage to yourself?
How do you cope, physically, with the pain at work?
That's a fair few questions, but I don't want you to miss information or push yourself so far that you suffer more.
Your family are suffering the Classic traumas of a family trying to come to terms with a member with this level of pain. Have you shared this, or any other on-line, support groups with any of them? Carers need support too. Therapy, Counselling, Church Groups… all are available and can help everyone.
Dave.
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I asked what a thinning optic nerve is indicative of and she said the most common cause is glaucoma but there are other things. She said this may have something to do with my neuropathy. she is an ophthalmologist and said that this is out of her expertise and that she would refer me to a specialist and send her report to my neuro.
I sit for most of the day so I'm in no danger of physically hurting myself other than crushing nerves and making myself go numb when I sit, but how do I avoid that?
How do I cope with the pain at work? My job does provide some distraction so I am not focused on it. I just try to push it away as best I can. I end up taking lots of bathroom breaks so I can cry.
I shared a letter that I found online somebody wrote about their struggles with SFN with my husband this morning. He said it helped him understand a little more. Not that he didn't understand. He's been great. I feel guilty for ruining his life and being this person that is depressed, angry, crying, etc 24/7. I feel bad for ruining his chance at fatherhood. Instead of enjoying what should be the most wonderful time of his life. he spends his time trying to console me and encourage me to keep going, while working at his stressful job, all trying to create a healthy environment for our son.