Hello lisas49,

Welcome to the NeuroTalk Support Groups.

I'm sorry for the reasons that bring you here.

There is a Stroke Forum here.

You may also like to use the forum search feature below to search for other threads and posts from people who have Dejerine-Roussy Syndrome. You may find them under Thalamic Pain Syndrome and Central Pain Syndrome as well.
http://neurotalk.psychcentral.com/search.php

Here is the Chronic Pain Forum

I'm sure you'll find support and information from the members here.
Take care there.