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Originally Posted by twitchwitch
This sounds just like me. The year I developed BFS (July 2013), I had a UTI every month for 6 months prior to that, taking Cipro and other meds. When I took Cipro, my twitching turned into what I can describe as mini seizures all over my body, everything was popping and jerking, much beyond twitching. Once Cipro was out of my body, things died down to "normal" twitching. I also have low positive ANAs, I have 2 herniated discs in my cervical neck. I have Herpes 1.....
Was the Epstein Barr virus a simple blood test? Who did that test, a neuro or your primary care doctor?
By the way, two neuros declared the neuro who diagnosed me with plexus neuritis as WRONG. They don't think I have it, but agree I could have something inflammatory going on. But they are not trying to find out what.  |
Well, I think part of your medical mystery is now more clear.
Cipro is very damaging to nerves. If it occurs at the spinal cord level, it can cause transverse myelitis, and other nerve damage.
It also damages tendons, which may deteriorate over time after the drug is stopped, and cause long term damage or even ruptures. This tendon process is not well understood yet, but may occur months to years after use of the drug.(all fluoroquinolones can cause these two effects).
This link has some personal stories and information that goes into more detail:
http://www.peoplespharmacy.com/2013/...ng-neuropathy/
Dr. Jay Cohen MD has some information about quinolone toxicity, here:
http://www.medicationsense.com/pages...oquinolone.php
While this damage is thought to be permanent, Dr. J. Cohen has suggested using magnesium to treat these reactions. But since the damage appears to be DNA damage, many believe that there is no treatment.
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All truths are easy to understand once they are discovered; the point is to discover them.-- Galileo Galilei
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Weezie looking at petunias 8.25.2017
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