Emily has been on it for 4 years. That in combination with Depekene have been the only thing that controlled her seizures. We were hoping to be able to wean off all meds as those seizures have been controlled for over a year, but she's had a couple of possible absence sz that may change that.

We did have a huge loss of appetite. At the time, Em was exclusively breastfeed due to severe oral aversions and between the Topamax and the aversions, we ended up with a g-tube. I'm not sorry about that, giving meds was a nightmare for all of us, but she is totally dependent on it now. However, we are still working on oral feeding.

I do wish that the docs would have warned us of the potential for the appetite loss, but no one said a word. It was the 4th drug we tried, she was seizing 100+ times per day and we were desperate. I don't know that anything would have changed if we'd known, but we would have been better prepared.