Hello Guitarguy,
So sorry to hear your story. There is a starting list of CRPS doctors at
http://crpspartnersinpain.com/?page_id=1436
It sounds like you are doing many of the right things to care for yourself. Keep up the good work. I do advocate being careful about your exercises in that some repetitive actions can aggravate a nerve and cause neuritis. I thought I had CRPS spread up my leg but it was in fact a neuritis caused by the recumbent bike and improved when I changed my routine. One less thing to worry about is good. Also Are they sure you didn't re-entrap at the surgical site? You wouldn't be the first...
I hope you find relief soon,
Littlepaw