I was diagnosed with it when I was a teenager also. Back then they didn't give any treatments or at least none were offered. I had Very painful breasts most of my life due to this and also I have cysts under my skin. Not many just some. One in a prominent place on my body once. When I asked a doc to open it and clean it out he just said put heat on it, I did that for months with no results. Eventually I opened it up myself and squeezed all the stuff OUT of it. THAT took me months, a little at a time. I haven't had much luck with doctors anyway and don't put much stock in what they say.

I'm sorry about your daughter.

But I have a suspicion that it's not a disease but a condition that has been Labelled a disease. We can live with it. I have. My periods have stopped now fo 5 years and many of the lumps and bumps have gone away. I think our female hormones feed them during our child bearing years. And once we get past menopause, well, the lumps and bumps go away. This is just My experience. Since I had my period since I was 9 and I am now almost 59 I'd say I have had a lenghty experience with this condition, FIRST HAND.