Quote:
Originally Posted by Littlepaw
Maygin,
I am so so sorry to hear about your spread. You must be so scared and frustrated. I am wondering if there is any place else that can do ketamine for you any sooner. I know some places have waiting lists but where I am numerous clinics that do them. Seems like there ought to something kind of close to you. There is a list of ketamine doctors (surely not comprehensive) at http://crpspartnersinpain.com/?page_id=1436
Might they consider a lidocaine infusion sooner? There seem to be quite a few proponents for those on the forum. Also we had a recent post from GoodnPlenty about a good response to Nudexta. It is dextromethorphan with a quinine drug mixed in to enhance the dextromethorphan. It's expensive but GoodnPlenty seems to be doing well. Dextromethorphan is an NMDA antagonist like ketamine just not as efficient on its own. I hope you can get something new started soon!
Sending Healing Love and hopes for relief, Littlepaw  |
Littlepaw, thank you so much for your support and this list. I did look and the only other one listed is at the Children's Hospital. My orthopedist reached out to the ketamine doctor and is hopeful he can help speed the process along. He has a long history of working with that clinic, so for the moment, I am trying to be hopeful that sometime will come soon.
Part of the problem is that I am really low on paid days off from work. This may be changing in mid-June (fingers crossed), but nothing's certain. So depending on how much or even if ketamine is covered by my insurance, it might be really hard to take unpaid time off, but I'm sure I'll be able to figure it out. After all, I'm incredibly lucky to have had a job and great health insurance when this all happened in the first place.
I hadn't heard of those other treatment options. I will bring them up next week when I see the doctor. Dr. Moskovitz is pretty knowledgeable about treatments and has no problem with compounded scripts. My insurance has covered the compounded neuropathic pain cream, so maybe it would cover some of this?
Thank you so very much!