Unfortunately there are many medical providers even specialists out there who do not believe in CRPS. It's just because they really don't understand how it works and what it does. You do need to try to find a doctor who will work with you and knows about CRPS and knows how to treat it. Unfortunately you will run into a lot of medical professionals who have no idea what CRPS is and if they do they don't believe in it and think it's just some sort of mental psych out. I really hope you can find somebody who can help you with your treatments.
You do have a long tough road ahead of you but it can be pushed into remission. You're gonna have to reach for reserves of strength that you didn't know were there but it is possible. You have to try to stay as positive as possible throughout this entire thing and do as much as you physically can without causing yourself more pain. If you don't try to keep using your affected limbs as much as possible again without causing pain then your condition will only worsen. The longer you go without using your muscles the worst muscle wasting atrophy can become an intern your symptoms will get worse. . .
Please know that here at Nero talk we are here for you whenever you need us . Don't hesitate to contact us if you have any questions or concerns or just need to vent with a bad day that you had. Stay strong and know YOU ARE NOT ALONE! All of us here have experienced medical professionals to don't believe us and all sorts of other things there's at least one person here who can empathize with your situation a matter what it is . I'm sending you all the love and support and prayers your way that you can handle.
Love and hugs!
Emma
Quote:
Originally Posted by Jennijojo
Has anyone heard crps refered to as a waste basket diagnosis?
I was seeing an Ortho who did surgery on my shoulder then started treating my hand. He injected it the most he could and asked that I go see a hand specialist. I saw said specialist and got my crps diagnosis.
So yesterday I was in with my dr at the old Ortho (I've always liked him) and I let him know I had a bone scan and told him what the hand specialist said. He replied "that's a waste basket diagnosis"
Is this the common thought with drs about this diagnosis? What's your experience with drs recognizing this syndrome?
I was unsure what my gp would have to say about the diagnosis and after Ortho docs comment I feel reluctant to tell her. I did however get a referral to a pain management center and I am going to talk to them about this. Surely a pain specialist will not scoff at the diagnosis.
Pardon my typos. My typing hand is my affected hand.
Jenni
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