I definitely know what you are talking about! I go through much much pain everyday, 24/7 unless I am sleeping and can actually get/stay to sleep. My wife is starting to get frustrated because she can't hug me or I can't get up to do favors for her, such as get her a glass of milk, help her around the house, etc. It makes me feel less of a man bc i cant do the manly things around the house. Luckily her 19 year old brother lives with us and doesn't mind doing them bc he knows and sees how I feel.I am too still TTRYING to work, but like you, am running out of paid time off.
I am still getting some scans run my brain and neck, to rule out ms and other things on top of crps. I have been chatting with a Facebooker who also has crps and has been dealing with for over 8 years. Hers hasn't spread yet luckily, but it's nice to chat with someone who knows about it. If you ever need to chat, don't hesitate to let me know. Can either text, pm, or chat on Facebook. We will both figure something out soon!!!