Quote:
Originally Posted by debbiehub
Thanks so much for your response,,,I have had RSD for about13 years now. It spread following a hip replacement in 2003 and has been relentless since. I do swim but less and less as my muscles get weaker. I also go to massage once a week. I am still working but now have to use a scooter to get around. I can't walk more then about a city block,,,,,I hate this so much~ I know I am singing to the choir here but I feel like WHY WHY WHY did this have to happen to all of us????
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I am so sorry to hear that you are suffering so much! I have had RSD/CRPS for 14 years and struggle daily with weight loss and muscle wasting! I am on 2 and a half times the recommended amount of morphine equivalents of Fentynal and Dilaudid daily. I still have pain! I had 27 blocks until they quit working and caused RSD/CRPS in my back at the injection sites! I am sensitive to light, noise, smell and TOUCH! I don't know what we are supposed to do about the wasting away! I will keep you posted if I find anything out that can help us with this! I was just telling my husband how terrifying it is to be getting so weak that I have a hard time lifting a pan of dinner out of the oven! Oh, I got it in 2001 and I am now 47. It has stopped my life!