Hi All, I'm new to the forum, I was diagnosed with Hydrocephalus at the age of ten days old and was operated to have a VP shunt in, still to this day I am with the same shunt (32 years) and have previously had bad headaches, I was discharged in 2010 and when asked if the shunt could be removed we were told that it would be too risky because I didn't have the change at ages 7/14/21.

Over the past Few years (well since I was 3 years old) I had a lazy eye which carried onto poor vision then slowly deteriorated, after number and number of tests the eye hospital said that it must be down to the hydrocephalus due to the pressure on the eyes.......... I am now registered partially sighted and my other eye is now deteriorating because of this.

Do any of you as old as me or older still have your 1st shunt still placed?
If so, have you asked why a new one has not been inserted?
Have you had any loss of vision?

I would really appreciate anyone's feedback on this. TIA