Emily sorry you've had a rough week but hopefully with your test results you might now get taken seriously - finally! I know the feeling of being disbelieved and ignored and I'm glad for you that you found the strength & resolve to keep pushing for answers.

Unfortunately I can't give you any info on RMSF - not something we have to deal with where I live. Hopefully someone on NT will come along and be able to help out.

Thanks also for yet another 'heads-up' about terrible neurologists. After waiting 5 mths I at last have my first appt. in 3 weeks time. Still not sure what approach to take - especially as my health deteriorated so much during the waiting time that I had to take matters into my own hands and get private testing done. Your experience along with others makes me reluctant to let on that I've been researching and I'm trying to keep expectations low.

Keep strong and let us know how you're doing.