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Old 05-04-2015, 09:59 AM
suev suev is offline
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Join Date: Jun 2009
Location: Texas
Posts: 748
15 yr Member
suev suev is offline
Member
 
Join Date: Jun 2009
Location: Texas
Posts: 748
15 yr Member
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Welcome to the forum!

I am seroneg and borderline on sfemg. My dx - like yours - was made through clinical observation by a neuro. (Sounds simple - but it took 2+ years and many dismissed docs to get there.)

Anyway, I take Mestinon (generic) and put up with the eye twitching to get the benefit for my arms and legs. It is 'more common' for people to have eye problems first before (if ever) progressing to generalized...but if there is one thing about MG that is consistent...it is that it is NEVER consistent!! Not within time or across patients.

You need to check out MG specialists - many are affiliated with teaching hospitals. I know some folks here have gone to Mayo. There is a famous MG neuro in Florida (somebody here has gone there - I can't remember his name - but they'll post it)

Good luck with your journey. Ask tons of questions - the folks in this forum have much experience and wisdom that they freely share.
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