Quote:
Originally Posted by JoannaP79
I hope that you can gain some hope in this message as you may well have to "soldier on". Ken in Texas.
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Hi Enna/Ken,
Thankyou for your messages. I've considered CRPS, the entire length of my legs are affected as is my spine my neck, everything. I know I have no choice but to accept this and keep going. I just cant believe I have got to the stage where I am going to go and have to ask for mobility support.
Is it possible to have a happy fulfilling life with joy and achievement once mobility is lost and pain is an ever present factor? I see no future and fear my son will resent me as he grows because I am less able to do all the things with him he wants.
Ken, your message is encouraging. The problem is not knowing exactly what is going on and where the pain/ damage is and why. It feels like more than the sfn. Because I dont know exactly whats going on mechanically within my legs, I dont know whether to rest, push through it, move, not move. Its getting worse daily. I'm so frightened. It seems those around me are distancing themselves from me, like they cant deal with it or dont want to. I dont whine or cry on anyone, I laugh and joke most the time. You can see that Im struggling though and things are going downhill rapidly.[/QUOTE] When I quit Hydrocodone I could feel the range of motion tighten up. I am stiffer now but not as medicated. Those meds only available thru PM now. My life became better immediately. Are you in PM? Fulfilling life possible? If you lose a loved one are you good to go the next day? No. Grieve for your loss. Many here have wailed and gnashed teeth but after you deal with the loss you can lift your head and tell your son that you love him and you are going to try to be there for him. I don't think kids need moms to play beach volleyball. If you are seen trying and struggling, your family will know you are in a fight. A FIGHT! Good Luck, Ken in Texas.