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Old 05-04-2015, 01:57 PM
jenng jenng is offline
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Join Date: May 2013
Posts: 135
10 yr Member
jenng jenng is offline
Member
 
Join Date: May 2013
Posts: 135
10 yr Member
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I think someone may have already mentioned this, but have you looked into thoracic outlet syndrome? Being in Germany, I don't know if you would have access to a vascular surgeon who is knowledgeable about TOS to do a proper work-up. Regular neurologists or ortho docs don't know what to look for. You seem to have a combination of sensory and motor issues (much like me!) that do not have an easy explanation. It is horribly frustrating, I know. It is entirely possible that you won't find out one "true" cause of what is happening, and you may join the "idiopathic" club.

For me, it's gotten to the point that I was driving myself crazy trying to find answers, but all the dr.'s and tests weren't giving any. I'm actually laying off the search for awhile. Trying to eat a really healthy diet, doing gentle exercise and PT and willing my body to heal itself. Sounds New-Agey, but I'm trying to save my sanity!
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Idiopathic Sensorimotor Polyneuropathy
Atypical Migraine
Chiari 1 malformation 7 mm
PLIF L5-S1 Sept. 2013

Lumbar MRI March 2013: degenerative changes from L3 to S1. L3 and L4 have tiny annular tears with disc bulge. L5-S1 bilateral pars defects anterolisthesis (spondylosis/spondylithesis?) I have an annular tear here too, along with a conjoined left L5-S1 nerve root. Mild effacement of the thecal sac at the origins of the bilateral S1 nerve roots, left greater than right. Mild bilateral Neural foraminal stenosis.
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"Thanks for this!" says:
madisongrrl (05-04-2015), twitchwitch (05-04-2015), zkrp01 (05-04-2015)