Quote:
Originally Posted by krmitdfrog
I definitely know what you are talking about! I go through much much pain everyday, 24/7 unless I am sleeping and can actually get/stay to sleep. My wife is starting to get frustrated because she can't hug me or I can't get up to do favors for her, such as get her a glass of milk, help her around the house, etc. It makes me feel less of a man bc i cant do the manly things around the house. Luckily her 19 year old brother lives with us and doesn't mind doing them bc he knows and sees how I feel.I am too still TTRYING to work, but like you, am running out of paid time off.
I am still getting some scans run my brain and neck, to rule out ms and other things on top of crps. I have been chatting with a Facebooker who also has crps and has been dealing with for over 8 years. Hers hasn't spread yet luckily, but it's nice to chat with someone who knows about it. If you ever need to chat, don't hesitate to let me know. Can either text, pm, or chat on Facebook. We will both figure something out soon!!!
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krmirdfrog,
Thank you so much for this post. I in some ways feel blessed that I don't live with anyone and my family is far away so they don't have to see how much I would let them down and need their help instead of helping (I was always the one who helped with things whenever possible). But on the other hand, it means that I'm doing this alone and that makes it really hard. I'm so sorry you are going through this. I feel like less of a person overall because of this condition. I'm definitely not a productive member of society anymore. Yeah, I've been through many doctors to rule out other things and now pain management wants me to go see one to 2 more to rule out other things. It's exhausting dealing with this disease. I will reach out here one day soon
