I was diagnosed w/RSD in 92' and full body in 04'. I was very fortunate to find an RSD specialist and he saved my life. I had been bedridden for almost 6 mos before meeting him. It took him almost a month of a very high powered medical treatment of TP shots,epidurals, and around 58 pills a day. But he got me up and functioning again. He devised

a pain management plan of diet and medication that allowed me to enjoy my life. Unfortunately he became I'll and had to retire. He had trained an associate to take over and everything was good until this year. This Dr. gave us 90 days notice that he was closing his practice and moving across the country to join a different field of medicine!
Now I fear that my life is failing!
I cannot find a Dr that will even discuss the medications that my medical records prove have worked for over 18 years. I have been to the ER 4 times in extreme pain,high BP, and have been on the verge of stroking. The ER gives you morphine liberally to get the pain under control but that is it! Your on your own when you leave.
It is not only my life but my family that is being destroyed by the ignorance of some Dr that will not have an open mind and research something that out of their "norm".
My husband is recovering from having rods put in his back and cadaver bones in his neck. June 10 he is scheduled to have his left hip replaced then once mobile they will be replacing his right knee. He needs me for everything right now. Also that leaves me to do his chores as well. Taking out the trash,feeding the animals, the yard,etc... Also I have a 7 yr. and a 9 yr. grandchildren that we are raising. I am in fear that we will lose our grandchildren as it is becoming more and more difficult for me to properly care for them.
And if this wasn't enough the last time I was in the ER they found that my gallbladder is full of 5/7 mm stones!

I got a referral to a " pain clinic" this Dr will not even discuss my previous Drs pain management. She is only giving a 10th of a similar medication. I went from 300 .03mg amps of Buprenex to a Butrane patch 10 mcg/
hour. So far I have lost over 63 lbs in 3 months, my arms and legs have started extreme atrophy because I am not able to be as active. My migraine are back,the burning and tearing sensations in the legs are back, extremely sensitive to any temp change. I have spent the last 2 days bundled up w/heater on me because it feels like someone is pouring ice water down my spine and the least breeze send me to the floor in a chilling seizure .

I truly don't know how much longer I can endure this. Or what is going to become of my family!