Hi Jenni,
I am sorry to hear you didn't get a better response. It Is difficult to understand in light of the fact that you have worsened and your BP can hardly be called controlled at the rates you gave. If the meds were working great that might be one thing but even then.
I would encourage you to look at the info and decide how important it is to you to pursue this and how quickly. We are our own best advocates and many busy doctors and overwhelmed nursing staff will never have the time to look at research to know what you are talking about. I am enclosing a link to a Medscape page where the very first line says CRPS is associated with ACE inhibitors. Can't make it any easier than that.
http://www.medscape.com/viewarticle/750778_3
Some ideas
- Fax the article or email to your doctor's nurse asking that it be given to her and possibly placed in your chart.
- schedule your appointment for sooner (I am sure your doctor will want to see you to change anything)
-take the info with you to PM and get their input
- ask for a referral to a cardiologist since your BP is resistant to treatment and hasn't been worked up. If you've gone round and round on meds, this may be a good option.
Good luck and keep fightin'. No one is more invested in the patient's recovery than the patient themself...
Sending Healing Love, Littlepaw