I am 62 and have had RSD/CRPS for over 20 years. I fell at work and compressed/ herniated all my lumbar disc. I was bedridden for almost 6 months until I found an RSD specialist. He had me up and active and actually functioning human for the past 18 years.
I was able to take care of my husband who is presently rehabbing from back surgery. He is due for a left hip replacement and then a right knee replacement. We also are raising our 7 & 9 year old grandchildren.
But this is all in jeopardy!!
As my Dr retired but not before training an associate to take over his practice. Well this Dr gave me A 90 notice that he was shutting down his RSD practice and moving across country ( Fl. To Az.) To open a clinic in a different field of medicine. That was in Nov 14 and the only Dr I have been able to find is a "pain Dr"
She refuses to even discuss my pain management that has worked over 18years. Instead she will only prescribe a 4 Butrane patch 10 mcg/hr. a month instead of 300 .03 mg Buprenex inj a month. Also I have been taking 740 Baclofen 20 mg now I have 30 10mg @ month.
This has led to being in the ER on 3 different times in extreme pain,high BP to the point of almost stroking.
Several RSD symptoms have returned migraine,burning/pain in both legs,extreme sensitive to temp changes, inaibilty to stand for more than a couple of mins w/o having to lie down. And forget sleeping more than an hour w/o waking from the pain. I have also lost over 60 lbs along w/severe atrophy in both legs.
I haven't had these problems in years.
The last time I tried to discuss these problems with the "pain Dr" I asked her what happened to "doing no harm!" I was quickly informed if I was if I wasn't happy I could find another Dr.

I am trying!!!! I just hope I do before its too late for me and my family