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Member
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Join Date: Sep 2013
Location: Georgia
Posts: 905
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Member
Join Date: Sep 2013
Location: Georgia
Posts: 905
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Good morning AliM :)
Nope you are not alone in this. I have severe SFN that started in May of 2013 and am in daily pain.
I'm almost 53 and a mother of 2 grown children and Grammy to 6 ranging in age from 8 to 18. They all live close by and tend to come in and out quite often.
I do what I can while they are here but as soon as I know I can't go on anymore I go to bed. That's right.....I go lay down. I tell them they are welcome to stay but they now know if I don't lay down and push myself too much I will go into a flare that can last up to a week.
At the beginning I printed small articles out for them to read and also told them to go and look up SFN on the internet so they would know more about what I'm going through.
And Jo*Mar is right......maybe they can go out for a few hours and have lunch or shop....especially if they come from out of town to visit you.
Before the cancer, chemo and now SFN I was supermom and supergrammy. Sadly my 84 year old mother is in better physical shape than I am. I've learned I have to take care of myself first. And the kids know that now. Even the sweet grandchildren.
Take care and keep us posted 
Debi from Georgia
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