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Old 05-06-2015, 01:43 PM
Unsure81 Unsure81 is offline
Junior Member
 
Join Date: Apr 2013
Posts: 81
10 yr Member
Unsure81 Unsure81 is offline
Junior Member
 
Join Date: Apr 2013
Posts: 81
10 yr Member
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Quote:
Originally Posted by calamityjoan View Post
So sorry to hear what you are going through. I am new here, but not new to the use of Prednisone (taken for another autoimmune disease). The dose you are on (15mg) is not much, especially if it is holding your symptoms in check, but be aware that Prednisone is the opposite of drinking from the fountain of youth! It has an aging effect on many body systems. It sounds as though for now it is a necessary evil, but the goal should be to start on another med for MG in order to decrease and/or stop Prednisone. You may also want to talk to your doc about taking the 15mg every other day to see if you can remain stable on that and allow for your body to begin to produce its own cortisol. Sometimes the feeling of being hit by an MG truck is also the feeling of being hit by the decreasing Prednisone truck! The prednisone truck can be a big one, this is why docs often prescribe every other day when tapering someone who has been on it a long time ( over 3 months). I hope this has helped in some small way. My best to you!
Thank you so much, I did try alternate day dosing but my Doctor wanted to double dose on the day I took it...which was too much for me!! And then I got a real drop off!! But I think now I'm lower I might try again and maybe just initially try 10mg going down to 5mg on the alternate day and hopefully then down to 15mg every other day. Thanks again!!
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