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Old 05-07-2015, 07:29 PM
ilikepolkadots's Avatar
ilikepolkadots ilikepolkadots is offline
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Join Date: Oct 2014
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ilikepolkadots ilikepolkadots is offline
Junior Member
ilikepolkadots's Avatar
 
Join Date: Oct 2014
Location: Idaho
Posts: 76
10 yr Member
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Quote:
Originally Posted by RidingRollerCoaster View Post
Hi Again

I just saw an ENT too and asked him about a perilymph fistula (is that the same as a perilymph leak?). He ruled it out for me because he said if I had one, I would have true vertigo instead of the general dizziness/giddiness and I would have a more hearing loss at lower frequencies (my hearing loss is very slight and at very high frequency).

So I'm just curious if you have true vertigo (room spinning) and significant hearing loss, and that is what helped lead to the diagnosis? I just want to make sure I can definitely rule this out since I am over a year into this and still dizzy.

He said I probably have what he called a vestibular concussion, which takes a very long time to heal.

Thanks for your help.

I didn't have 'true vertigo' nor did I show hearing loss during the hearing test. My hearing would just suddenly go muffled and I had dizzy spells but more like a drunken feeling, never a spinning room. I learned to compensate as in re beginning I would run into walls and eventually my body adjusted to a sideways life! I would ask him to do the air test where he blows a puff of air in each of your ears and see if in increases your symptoms. If it doesn't then you can put it behind you.

CSF is a cerebrospinal fluid leak and is similar to a perilymph leak but a different fluid.

I'm sorry for your troubles and should let you knew I sought out many a second opinion until I finally found someone who would solve the problem. I've noticed when you say TBI or concussion, many doctors stop there as just think what you have is a brain problem and atop ruling out any physical symptoms. It's a shame as I could have been fixed 3 years earlier when I saw and ENT originally! He just looked at my sinuses and shrugged.

Keep at it, sorry your in discomfort. What are your symptoms like and can you work?
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I am a 33 year old female who is healing from Post Concussion Syndrome for 32 months after a cycling accident.

Therapy: Vision therapy to improve focal and ambient systems Neuropsychological testing and treatment Vestibular therapy Gabapentin 1800mgs/daily Clonazapam when needed

Natural Therapy and Supplements: Brain breaks every 2 hours Meditation GABA 1000 mcgs B12 1000 mcgs Niacin 3000-5000 mgs (this has significantly helped with brain fog, mood control, and depression) Nordic Naturals Fish Oil 2000mgs Potassium Multi V Glucosamine 5HTP Vitamin D 1500mgs

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-Deepak Chopra
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