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Originally Posted by Stang1
Oh no. I'm sorry to hear that. That's great that your Dr is standing behind you. Do they want you to do more PT? I tried that and it did not help at all.
I had my second EMG yesterday and they concluded that I have some (very little) electrical activity to the trapezius and it also showed extensive nerve damage. None of the other muscles in that shoulder are effected.
Today I had a consult with a specialist about a nerve graft. After discussing my history that my shoulder problem began months before my Craniotomy when they severed the nerve he informed me that I would not be a good candidate to have this procedure done. I was told that if you wait over a year that it would not take. Now with this information I wonder why my Neurosurgeon didn't inform me of this so that I would have had that option back then. So now back to my Orthopedist. Very frustrating. Have you discussed a nerve graft with your Dr?
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Yes, I did PT for 3 months and the therapist indicated there was no rehabilitating this injury. Conservative treatment will consist of painkillers. The surgeon is very supportive and doesn't understand why the insurance is making me wait 4 months, when they ultimately will approve. It is extremely frustrating when I am on COBRA paying for coverage.
I asked about the nerve graft and they indicated they don't have a very high success rate. I also have had back and forth with the Neurosurgeon and Orthopedist, I relate to your frustration.
I'll let you know what goes on with the appeal and let me know how things go with the Orthopedist.
There has to be better days ahead!