I don't know how or why but I have had some improvements this week. First and foremost I have gotten the most sleep this week than I have in a year. Last night I slept from 930pm to 1pm (awake for 0.5 hour) then slept from 130-530!!!!! Every night this week my sleep has been longer, less wake ups, less pain, less dreams. My pain levels have decreased and the compression feeling has decreased too. All symptoms remain (twitching, jerking, tingling, buzzing, compression, band-like feeling in limbs, burning, aching, stinging etc) but the PAIN is better. Even my mood has gotten better. I have only cried once this week!!!

Here is what I have been doing.

1. I dropped to 30mg of nortriptyline. I was prepping to add Gabapentin, so I wanted to get down to 20mg of nortriptyline. However, since I have had improvements this week I was afraid to drop to 20 in case improvement is due to nortriptyline. I haven't started the Gabapentin.

2. I loosened up on my diet and have eaten pretty much anything I wanted this week.

3. Over the last two weeks I have had 5 neurotherapy/biofeedback sessions.
The DR was very honest in saying they may not be able to help me. But they do treat a lot of patients with chronic pain (ex. fibro patients). The whole thing seemed hokey to me but as I have tried ALMOST EVERY OTHER TREATMENT (herbs, supplements, psychologists, psychiatrists, naturopath, acupuncture, exercise, yoga, medication etc.) I decided since it's not invasive there is nothing to lose except money. It is not cheap. Each session is $120-170. Insurance will pay for some but I have to pay up front and get reimbursed later.

My PC dr recommended I try it. He has spent countless hours (along with his wife) at home pondering and researching treatments, medications, similar cases etc in order to try and help me. He originally wanted me to go to the Amen clinic in the US but then found the swingle clinic here. My doc called and conferred with the clinic founder for over an hour. Explaining my case and asking questions about what they do and how they may be able to do for me. My doctor never stops learning, he is always reading, researching and attending conferences in order to increase his knowledge. I trust him and respect his decisions.

I think the improvements are due to the neurotherapy and biofeedback. I am really surprised to think this, since I went into it with zero expectations of it doing ANYTHING. Too soon to tell. This really could just be a coincidence. However, this is the best I have felt in a long time. I just thought I would post and let people know I am doing a bit better this week.

I appreciate all your help and support. It helps a lot