Hi lonelygirly
I'm sorry to read your story about a condition, Spasmosdic torticollis, which I, like many, had never heard of. To figure out what you are dealing with I did a little searching.
You've probably already researched info and support groups etc. yourself but here's a link to one lady's story that I thought you might be able to relate to:
http://spasmodictorticollis.org/inde...Emily-Chaconas
If you go to the home page on this site it has other links to stories and info.
I hope you find some answers and with help can find a way to manage the ST and have the baby you so long for. All the best.