As Kitt said, no one can tell you how bad this is going to get, but if it is CMT and you are affected to this degree now, it could continue to progress to the point where you have trouble with your work. It may also level off for quite a while.

There are a lot of possibilities from where you are now and absolutely no way to know which one of them will come true. I have CMT, and I have two sons with symptoms, one 28 and one 30. The younger one is a casino dealer, a job that requires long hours of standing and a lot of manual dexterity. He has pain and numbness in his feet and some numbness in his hands with a slight loss of feeling. He is afraid of dropping things in the future and being unable to continue but is hoping to get promoted into management before then.

The older one is a teacher in China. He was an accomplished pianist but can only play for a short amount of time before his hands go numb, and he has trouble walking. He is trying to find a career to train for which would accommodate his increasing disability and allow him to return to the US. Both of them have college degrees, one in Russian, the other in business and technical writing, but these are not terribly practical, and the recession did not help.

CMT usually progresses slowly. Stay away from statins and certain antibiotics, especially Cipro or Levaquin and related types. They can really speed up deterioration. If you have trouble with your feet and legs get evaluated by a podiatrist for braces, they may help you a lot. Common sense taking care of yourself, getting enough rest, eating well, exercising but not to the point of exhaustion, all can help. CMT is a progressive disease no matter what, so you may want to look down the road at any related field that you could move into as you get older. Could you teach in a trade school? Go into business for yourself eventually and hire a young guy to do the crawling and climbing?

Just try to learn all that you can about this disease, and be aware that the Internet is rife with contradictory and incorrect information. It can be both better and worse than whatever you read about CMT. I have severe pain and can't stand for long or handle many steps but I can walk on level ground all day.

There is nothing harder to see on this forum than young people like yourself whose lives are rearranged by neuropathy, successful careers, parents of young children, but life has much harder darts it can throw than CMT. It is challenging but don't throw yourself off the cliff yet!