I've got a sister with MS, and I call it MS inside out! See, she was the "good girl" sister, so she got the "quiet" disease that isn't painful, and I was the wild child out of control one, and I got the wild out of control painful disease!

However, we are 1/2 sisters, not raised in the same house, we only share the same father, not the same mother... so it "may" be genetic, and it "may" be coincedence.

Anyway, I wrote Montel because I want him to understand that there is a similar disease to MS that is more painful.

I think that if they get a "flood" of letters from us, it will raise some eyebrows and they will pay attention! One or two letters a year won't make anyone pay attention, but if they get 10 or 20 letters in one week from different people all over the country, they may see it as more than a coincedence! I think if we coordinate this well, we could be on to something!
And if they don't listen the first time, we do it again, and again, and again, until someone does listen! We've got to get the attention of people who can help with this. I'm sure there are people out there who are interested in making money off of our problem somehow! And if we can get our story heard and some more research and medications for us as a result, I'm willing to write letters, go on talk shows, and scream a little!

Terri