Member
|
|
Join Date: Feb 2011
Posts: 179
|
|
Member
Join Date: Feb 2011
Posts: 179
|
Like yours, my symptoms are in my feet and lower legs too. No pain , mainly weakness and balance/walking problems. I have AFO's which help tremendously!!! They make a world of difference in walking and help with balance. My diagnosis is "atypical cidp" basically because nothing else could be found and it is hard to get treatment without a diagnosis.
It definitely is no walk in the park, and I wouldn't wish it on anybody--but on the good note, I have not progressed in several years---the weakness is only in my lower legs and feet. So this could be the case for you too. Sounds like you have dealt with it this way for a few years?
I strongly encourage you to look into some lightweight carbon AFO's, they might be all you need at this time to continue with the work you are currently doing. They also help a lot with the fatigue, when the damaged nerves were being pushed too hard I would get tired quickly, this doesn't happen with the afo's supporting the damaged areas.
|