Originally Posted by pogo

Where do you live that your hydrocephalus is managed by a neurologist? Right now we live where my daughter has a pediatric neurosurgeon but for a few years we lived outside the U.S. where a neurologist managed her care (no revisions during that time). Went to a transitioning talk recently where they talked about how hard it is to find a surgeon who will take a new patient on when one ages out of pediatrics. Kids generally see a surgeon once a year where we live, but imaging can be less frequent, our docs want imaging every few years if one has been trouble free. I don't know what the recommendation for adults is, got the impression baseline imaging is infrequent. She does see a neurologist every three months or so for seizure issues. I've never met a neurologist who knows much about hydrocephalus and a lot of adult neurosurgeons don't sound interested either based on extra overhead for such patients, better pay with just straight up surgery I think.