Member
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Join Date: Dec 2014
Posts: 791
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Member
Join Date: Dec 2014
Posts: 791
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Hi Elaine, I have small fiber neuropathy. It is actually called small fiber peripheral neuropathy. I am not an expert on the different types of PN, but I know that SFN often comes with autonomic nervous system damage/ dysfunction where I don't think typical PN does. Do you know what your cause is? Mine has been collectively thought to be definitely autoimmune- Sjogrens/ possible tick borne bacteria. I have it all over. It started gradually with autonomic symptoms and numb spots, tingling left leg in Oct 2013 (but I was still ok and functioning- not much bothered by it and thought it was just hormones and lumbar disk) and then I had developed shooting nerve pains in my shoulders, elbows, and hands and muscle spasms last summer that eventually landed me in the ER in Sept. I had a debilitating phase from Sept to Jan where I could not drive or even brush my little girls hair. The nueropathy spread all over my body. It is a long story with many symptoms, but I am well enough now to cook again and to do most of my housework. I don't have a day symptom free and I am far from back to myself, but no where near where I was 5 months ago. Its pretty much a night mare, but I'm hopeful and trying to stay positive.
There is a lot of help on this board.
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